Tuesday, February 26, 2013

Another hospital visit.

This past weekend, Devin ended up in the hospital again.

It started as an innocent doctor's appointment. After weeks of back and forth on whether we were going to send him for a second opinion, an episode in Wal-Mart sent us into panic and we decided that we would definitely make an appointment.

We went on Friday afternoon for the appointment. It was with a pediatrician in Winterville. We thought we'd go, sit down with her and tell her what we've been seeing and she'd either recommend us to a specialist of some sort or send us home and tell us we've lost our mind.

Instead, she sent us straight to the hospital.

It kind of freaked me out.

First of all, it's hard to explain what exactly is going on with Devin so we always have trouble explaining it because we really don't know. All we know is something isn't right.

This doctor was great. She sat down and talked with us and really let us go through the full story, from birth to now. She stepped out and looked at the hospital records and came back and agreed, the things that happened at the hospital didn't seem right.

It wasn't until she found out about some things in Allen's family that she became concerned enough to admit Devin in the hospital.

Devin has some choking issues and they seem to come from out of the blue. Sometimes he chokes for no reason. He isn't eating or anything. We also have an extremely hard time feeding him. We were told he as acid reflux so our initial thought was that all this mess is attributed to that.

In the hospital after he was born, Allen told the doctor that his family has this esophagul trachea defect in his family. He has had two siblings die with that. Apparently this is when milk goes into the lungs due to some defect. We were concerned Devin had it. The doctor, however, said there was no way he had it because if he did, he would not be able to get the feeding tube in. That made us feel better and we moved on and didn't think twice about it.

However, when we were telling this doctor the story, she got really wide eyed and said that was not true, that there were actually two different types of that defect. A feeding tube would rule out one of them but not the other. That's where she became concerned and sent Devin to the hospital. That, and the fact she was hearing his heart beat on the wrong side. That is something else that is common in Allen's family and I cannot think of the name of it.

Turns out, Devin's organs are in the correct place. Maybe his heart is so giant that you can hear it on the other side!

Everything also checked out for the esophagul thing too. I felt like that would be okay because if it hadn't, Devin would probably not have lived this long. But, I was glad tests were done to 100% rule it out. Devin had to have 2 x-rays and one other test. But all three came back great and ruled out the stuff the doctor was worried about. That's the good news.

The bad news is we still don't know what's going on. It all falls back to severe acid reflux but Devin has not officially been diagnosed with that and I'm not sure he has as severe a case as people think. There's a lot of symptoms that could be acid reflux but there's others than lead me to believe it's not. So, we're left with just waiting to see if things improve. We did have a feeding team come in and talk to us and give us some suggestions on feeding that would maybe help. They looked at Devin and noticed some rashes that could indicate he's allergic to his formula. He's on a special soy formula because there were concerns he was lactose intolerant. So that may be causing some of the issues. But, again, we don't really know.

We go back this week for a follow up and we are hopeful that we'll be able to talk to the doctor a little more and maybe figure some more things out. But until then, it's still a wait and see game.

No comments:

Post a Comment