Answers for Devin

Having a sick kid is so hard. It's one of those things you just can't put into words.

Devin has been home now for 6 weeks. Every day, he seems to be getting better. But it also seems to be that after several really great days with him, something else happens and we take a step backwards in his progress. The problem is we STILL don't really know what the heck is going on.

While Devin was in the hospital, we got very few answers as to what was happening. At first, it was fluid on his lungs or his lungs were underdeveloped. The doctor even considered whether Devin was born premature! UMMM He was 10 freaking pounds. I was one day away from being 40 weeks when he was born so even if they got my date off some, there is no way in God's green earth he was premature. If I wasn't so emotionally unstable and drugged up when all this was happening, I'm pretty sure I would have laughed when the doctor suggested it. Anyway, they moved on from that and said he had that tachypnea thing, which a lot of newborns have when born. Typically, though it goes away in a few days. Devin's didn't so the confusion continued. Eventually, the doctor just stuck with fluid on the lungs which could have been from underdeveloped lungs, which we still don't know why that occurred, or it could be that Devin maybe had pneumonia. Either way, when we walked out of that hospital, we still didn't know exactly what had happened. All we knew is he said that Devin's breathing was significantly better and the doctor said we could go home.

Anyway, though the doctors seemed to focus on Devin's breathing issues, he also had some stomach issues that we had to deal with while in the hospital. His formula was switched 3 times. We are now on this Soy Enfamil formula. It's supposed to be easier on his stomach. Devin also had the nipple on his bottled changed at least 4 times. All this was because of his stomach issues. Eventually, he was put on acid reflux medicine. He is still on that.

Devin isn't really having the breathing issues anymore and we are thankful for that. However, he is still having some digestive, stomach issues. That is what we are still seeing that concerns us.

Devin is actually choking and gagging. Most of the time it happens randomnly and not even while he's eating. He'll start coughing and basically stops breathing for a bit. It's the scariest thing in the world. We thought he was getting better because we haven't seen it in a while but last night, it happened again. Twice.

I have no idea what is happening to my little boy. I just know that he's the most unhappiest baby in the universe. He cries a lot and he seems to always be so irritable. That in itself has been bad enough. But now, seeing that he's still having the choking thing going on terrifies me. So, we are moving forward with our plans to get a second opinion.

I hate to have to put Devin through more doctors but he's not getting better and it sucks to not know exactly what is going on. I'm not even sure it is acid reflux but I really don't know. That's the hardest part. But we've delayed going somewhere else long enough. And now, it's time we get some answers.